
Been working on the Remicade infusions. They cost a pretty penny even with 90% covered. Yes, I'm lucky that I have insurance. But 10% of a pretty penny times as many infusions is still sucky. I'm waiting for them to work! Still in a lot of pain in most of my joints. My Rheumy says every 6 weeks instead of 8 weeks for me. Still. Waiting. On 5 mg of prednisone (actually back on) just to help with the achy-breaky fingers. I must say, still not as bad as some others...
I go in and have a slow infusion in my arm over a few hours plus a normal saline (NS) bag to clear the lot. I have to give myself Methotrexate injections every week so that my body does not reject the med. Remicade is the same as the last biologic I was on, Enbrel. But the Enbrel injection site reaction kept getting bigger and bigger despite my downing Benedryl every day (even while I was trying to stay awake at work, and I work nights!). However, recently, I have been fighting the eczema reaction on my face that I get every winter. Is it related to Remicade? It sure is a lot worse, a lot sooner. Who knows?
I have been hoping to start exercising now that I should be feeling better. The winter is coming and the rain and wind are staying around. Is this a part of my new disease. Hoping that winter does not kick my butt? Because, my joints are screaming. I'm afraid of the colder weather! I want to walk, but my hips ache afterwards. I just grin and bear it and hope to distract myself with other things. Remicade work!
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